Tag: dementia

F is for Family, Fear, and Forgiveness (and a Fun Fruitful Lesson on Family Systems)

Published on by Pam5 Comments

Families fall apart in myriad ways. I see it all the time in my work with counseling clients, and my own family is not immune to this fracturing.

After two years of estrangement, I found my father at the La Penita Thursday Market, manning his real estate booth (see D is for Dad). Or should I say, my travel companion (MTC) found him and breathlessly reported back to me.

“He looks like he’s having issues moving, and his eye is kind of funky,” she said. “You really should go over and see him.”

I wasn’t sure. After the initial wash of relief that he was still alive, I chafed at the fact that he had not responded to my emails and texts telling him I would be in the area. I didn’t know what sort of reception I would get. I wasn’t sure I could handle him refusing to see me. But that was my frightened child self.

My adult self, my Mother Self, knew differently. I couldn’t imagine refusing to see one of my own children, no matter how hurt I might be, no matter what they might have done, no matter what their feelings for me. And like I say hundreds of times a week (it seems) to my therapy clients, “we are all more alike than we are different. If you feel this way, chances are others do as well.  Operate from that assumption rather than from fear.”

Still, I stood, immobilized by my fear, feet frozen to the cobblestones among the push and shove of gringos haggling over pesos with the artisans and tchotchke vendors. The vibrant colors of Mexico blazed in the early morning sunlight.

“Go see him, Pam,” MTC urged. “He might not have much time left.” Maybe she was being hyperbolic regarding his health (after all she didn’t have a baseline), but she did have recent experience with her own mother’s death, her own problematic parent. “What do you have to lose?”

I often find myself describing family systems to my therapy clients as a mobile, a delicately balanced objet d’art, and when one piece is moved (or removed), the entire piece is thrown out of alignment. In order to restore balance, the other pieces must shift positions or forever be askew.

But, systems resist change. Especially the family system. It seems easier for the missing or moved piece of the mobile to simply resume its assigned place rather than for the other pieces to change. Often, family members will continue to resist the change, opting instead to dangle there in their dysfunction, rather than shifting and adapting to a new arrangement in order to restore optimal functionality.

So it was when my parents divorced at the turn of the last millennium. For the better part of twenty years, I resisted my father’s new reality, his new marriage, his move to Mexico, his pursuit of his happiness, irritated at the changes, the inconveniences, the occasional bad behavior.

Our own Family Fun Mobile grew even more askew when Dad’s wife emailed mid-pandemic (or texted or possibly even called) my brother and then me to ask if we could take care of Dad for a couple of weeks while she had hip surgery. Reader, it seems petty in retrospect, but that request sent us over the metaphorical cliff.

For starters, I had just put my house on the market and literally had no place to house Dad, had I been willing, but I had also spent the past few years caring for Mom, his ex-wife, who had dementia and was now in a care facility. I continued to harbor resentment for what I saw as his abandonment of her (to be fair, she was perfectly healthy when they divorced). Still. Somehow, I saw him as responsible for her all these years later. Even though I can’t imagine being held responsible for my ex-wife even five years after our split.

And I continued to be irritated about how he had treated me when I came out as a 17-year-old lesbian (it wasn’t great, Reader, but it was over 40 years ago). My brother’s refusal to look after Dad sprung from deeper, more recent wounds, but without getting into details that are not mine to share, suffice it to say, I stuck up for my little brother. As I am wont to do.

Long story short, we didn’t just tilt our mobile. We ripped it down and threw it in the trash.

And that’s where it was as I stood in the hot Mexican morning trying to decide if I could begin the process of repair. Our family had fallen apart in some very specific ways. Could it be salvaged?

I took a deep breath and decided to put what I knew into practice, to be the grown up adult I knew myself to be. I told MTC I would find her later, and I walked down that cobblestone path toward forgiveness.

A Return to the Interwebs. Happy New Year!

Published on by genassecretsanta6 Comments

Consider this my Christmas Letter for 2017

Relaunched the website tonight. I’d taken it offline while I looked for a job. I go back and forth on this issue–should I let prospective employers see what I’ve written here or should I not? Will my writings help my career or harm it? I have no idea. But, now I have a job, so there.

I have a job! As a counselor. Good thing, since I woke up on Christmas to an email from the Federal Student Loan Servicing Company, reminding me that I was half way to the end of my Student Loan Repayment Grace Period.  Yay! I won’t get thrown in debtors’ prison. Yet.

And I’ll be in private practice soon, since my job affords me time to see clients on my own as well. I will be working three, twelve hour shifts each week, so I will have a few other days in which to start building my own practice.  I am very excited about both of these opportunities and couldn’t have imagined or hoped for a better outcome and transition into the mental health counseling field.

On the homefront, my 27 yo kid has moved in with me for awhile and I am completely digging having her around. It’s a chance at redemption for me. How often do we get an opportunity to have a real life “Do-Over?” I am one lucky mother.

Speaking of Mother, she has moved to a memory care facility. We reached a bit of a crisis point after Thanksgiving with a pulled tooth, a root canal, and a bottle of pain meds. Suffice it to say that her level of needed care exceeded my level of competency. She has a roommate who has a PhD in Sociology, so Mother is both duly impressed and thrilled to have someone to talk to who is at about the same stage of Alzheimer’s. They arrived within a week of one another, and both seem content (generally) with each other.

Charlie (or Chuck, as I like to call him), Mom’s shitzu, moved too, and seems quite happy to be there along with a handful of other dogs, a couple of hedgehogs, a Siamese cat, a tankful of fish, a cage of birds, and a chinchilla.

The transition to the facility was as awful and wrenching as I imagined it would be. Mom was none too happy with me that night, but I had to move her for her own safety. Who wants to have to make that sort of decision for someone? I certainly never imagined I would have to. And, I am thrilled to have my life back, my time and my home back. You can’t know what it’s like until you live it.

I spent the holidays working. Mom spent Christmas and Christmas Eve with my kids and their other mom. I am grateful for everyone’s love and caring these past few weeks, these past sixteen months. I couldn’t have done this on my own.

Happy New Year!

Pam

Alzheimer’s Sucks

Published on by Pam22 Comments

Alzheimer’s disease sucks. Gawd. It sucks on so many levels, I don’t know where to begin. I guess I’ll start with a story, the story of today. My today:

I wake up at 6:20. Before I do anything else, I listen. I strain my ears toward the kitchen and concentrate. Then, wishing I could rotate my ears, catlike, I swivel my head so my ears point toward Mom’s bathroom. Silence. I breathe. I get out of bed, softly walk to the bathroom, pee, do not flush.

I pad carefully to the kitchen to start the coffee maker. I tiptoe back to my bedroom and pluck my phone from the nightstand as I quietly, so very, very quietly, crawl back into bed, phone in hand so I can check Twitter to see a) if The Dumpster resigned b) if North Korea bombed us, and c) how many followers I have. While the coffee brews, I repeat a, b, and c for Facebook, my blog, Instagram, and finally, the more traditional news sources. I check my mail, my calendar, and my messages and then I tiptoe back out to the kitchen for coffee, which has now brewed, and either a smoothie (if I remembered to make it the night before) or a banana. I grab a napkin, and I creep stealth-like back to my room. I listen. So far. So good. I eat my banana, I sip my coffee.

I continue my foray on the Interwebs: I check the local paper, the local paper’s horoscope, the local obituaries, the NYT for the latest Modern Love or Couch column. If I am feeling particularly brave, I might even watch and listen to a video without putting on my ear buds. I sip coffee and eat banana, and while I read, I wait for the coffee to work its magic. When it does, when the banana and the coffee kick in, I head back to the bathroom. I no longer try to be quiet. The jig is up, because as soon as I flush that toilet (this time I have to flush, Febreeze alone is not enough), she’ll awaken and arise. The peace, my peace, short lived as it was, will shatter, and I will not be able to reassemble it, the sharp-edged shards of my peace, until mid-to-late evening. For the next thirteen hours, I am on duty. Double duty.

I go back to my bedroom swiftly, quietly, a thief in my own damn house. I listen, not breathing, craning my ears—is she making breakfast yet? She moves fast once awakened. My running stuff is hanging in the laundry area adjacent to the kitchen, which is adjacent to Mom’s wing, which is visible via a closed set of French doors, and I might be able to get my shorts, t-shirt, toe socks, and sports bra without her seeing me, but the odds are rarely in my favor.

My home is no longer my haven. I will seek peace all day, but not here. Away. I will seek peace on my morning run at Lake Padden. I will look for quiet in my kayak after my run. I will float and read and soak in the sun for as long as I can because inevitably I will need to go home and shower and get on with my day. I have clients to see and classes to attend and questions to answer. So many fucking questions. And Mom will be waiting for me at the front door. She will hear the beep when I lock my Jeep, and she will open the front door.

“How was your day?” she asks. “Have a good run? What are your plans for the day?”

I push past her. “Good. Fine. Read the note Ma. I left you a note on the counter.” I plop my running bag, a gift from my brother, onto the bench in the entryway, kick off my shoes.

“Okay, good,” she smiles. “Mommy was just wondering.” Her voice rises an octave. She talks to me the way one talks to an infant. She totters back to her wing, behind the French doors; she will putter there while I change. I used to strip naked in front of the washing machine and then wander carefree to the shower, but now when I strip off my running clothes, I do it in my room and throw on a t-shirt and a pair of boxers so I can take my sweaty nasty clothes to the washing machine without my mother seeing me naked. Ew.

I change in less than three minutes. Mom meets me at the washing machine. “How was your day?” she asks. “How was your run? What are your plans for the day?”

“The run was good,” I say, breathing deeply through my nose. “Not too many people.” I try to smile her direction. “The jury is still out on how my day will be, though, Ma. It’s only 10:30.” I nod toward the counter at the note I left her before I went running. “I left you a note.”

“Oh,” she hangs her head and scurries back to her side of the French doors.

“Ma,” I call. “Ma, it’s ok. Don’t leave. I just . . . “ My voice trails off as she shuts the door. I can see her sit on her couch and pick up the tv remote.

My heart sinks. I suck. I should be more cheerful, nicer. But every morning it’s exactly the same. Every (mostly). Fucking. Morning. Since. September. The same questions, repeated, ten, fifteen, twenty times an hour. Every hour. All day.

I shower and get dressed. I finished my internship hours a couple of weeks ago, but I still leave the house every day as if I am still going. Coffee shops. Friends’ houses. Breweries. Whole Foods has an amazing happy hour everyday from 4-7. Three dollar pints.

Mom meets me at the front door. “You’re in Seattle today? You have to drive? Is Diane coming to pick me up for group? Is it until 1 o’clock today?”

I sigh. “Did you see the note, Ma? I’m in town at my internship. Diane knows. Yes, it’s at one. I wrote it all down for you. Have a good day.” I muster a malnourished smile as I stand at the door and wait for her to move. She stands in the doorway, unaware that she is in my way.

“Goodness,” her voice goes up an octave, and the baby talk begins again. “Mommy wouldn’t know what to do without you, Pammy Sue.”

Just a note: Hmm. I guess this is the first in a series. Possibly it’s the second in a series. Caregiving for someone with Alzheimer’s or dementia is a very strange adventure. Per my usual MO, I did not come very prepared for the ride and am learning on the fly. I’ve connected with the local Alzheimer’s Society where Mom attends groups three times a week. I am well-connected with services. That’s the easy part. The hard parts are more complex, more nuanced, more opaque. I hope to be as honest as I can here. My intentions are good. I want what is right and good for my mom, but holy shit it is really difficult to figure out what might be best at any given moment. We have entered uncharted waters, Dear Reader. Flotation devices strongly recommended. Buckle up. 

A is for Alzheimer’s

Published on by Pam13 Comments

Note: Since it is also National Poetry Writing Month (or NaPoWriMo) in addition to the 2017 A-to-Z Challenge, I will try to include a poem at the end of each blog entry. Today’s poem is a Haibun, a Japanese form in which a prose-poem precedes a haiku. 

My mother only eats off of salad plates, and she will only use a salad fork. When we run out of small plates (we only have six and she will not use the one that doesn’t match the rest, the blue one with stars, the sun, and the moon) and small forks, she tells me it is time to run the dishwasher even though it may contain only her six salad plates and her six salad forks. She does not remember that she can wash the plate and fork by hand. She eats off of small plates and she drinks only tea but her teacup goes in the dishwasher rarely. It is brown with discoloration and stains and sticky from the sugar she ladles into her tea.

Her habit of eating off of the small plates is not new. She has been in the habit of using the salad plates for a long, long time now. It comes, I believe, from years of being monitored by my father for overeating. For as long as I can remember, my father scrutinized my mother’s eating habits. When I was a kid, a teenager, I remember going out for ice cream and my dad making my mom get a diet coke while the rest of us had ice cream cones. Divorced for 16 years, she now eats ice cream right from the container. It’s as if not using a bowl means the ice cream doesn’t count, doesn’t really mean anything, will not invite supervision or scrutiny.

My mom moved in with me in September. My brother and I had been fielding reports from her friends and neighbors for several months in which they outlined her memory declines and odd behaviors. She reported seeing Sasquatch in her back yard a year ago in March. She forgot that she had ever played Farkle, a dice game that she played regularly over the past several years with friends and family. She got lost driving and forgot why she went places, her best friend told us.

I expected she would move in with me last June, but she called and refused. She didn’t want to leave her community or her friends. She had book clubs and garden club and Friends of the Library, she said. I had time last summer, time to orient her to Bellingham, time to sign her up for services, time to drive her to appointments. But she couldn’t quite marshal her resources, became overwhelmed at the monumental task of packing up her house, of sloughing off unnecessary items, of sorting through the detritus. My brother and I showed up last Mother’s Day weekend and hauled a ton of stuff to Goodwill and the dump. We divvied up her Waterford crystal and boxed up the china to be auctioned off on Ebay. I prepared her room in my house, but she didn’t come in June. She didn’t come in July or August either. And when I asked, she told me she was too tired to pack, too overwhelmed to organize the boxes.

Her friends kept calling. She shouldn’t be driving, they said. She tells the same stories over and over, they said. As if I hadn’t noticed that. Each phone call was the same as the last. Each conversation might as well have been a recording of the previous one. She couldn’t muster the energy or wherewithal to travel. She had missed Thanksgiving and Christmas the previous years. She told her friends she hadn’t been invited. She told her children she didn’t feel like traveling. I know now that she couldn’t get organized, couldn’t leave her dog, didn’t know what to do to get ready.

My mother eats off of small plates. She only will use a small fork. Her life is getting smaller. The walls are closing in. On both of us.

Haibun
My mother has become an old woman before my eyes, aging into forgetfulness and dementia, a victim now of ancient routines. She flutters toward the light, safe and trapped simultaneously, unable to escape the confines of what little remains, the walls of her cerebrum wiped smooth, scrubbed of the dust and fluff of daily nuances, the surfaces there papered only in history, teflon to what is new. She hunkers inward, shuttering her blinds, while painting on a brave façade.

Memory’s threads fray,
Ragged edges and patchwork
The mind’s makeshift quilt