A is for Alzheimer’s

Note: Since it is also National Poetry Writing Month (or NaPoWriMo) in addition to the 2017 A-to-Z Challenge, I will try to include a poem at the end of each blog entry. Today’s poem is a Haibun, a Japanese form in which a prose-poem precedes a haiku. 

My mother only eats off of salad plates, and she will only use a salad fork. When we run out of small plates (we only have six and she will not use the one that doesn’t match the rest, the blue one with stars, the sun, and the moon) and small forks, she tells me it is time to run the dishwasher even though it may contain only her six salad plates and her six salad forks. She does not remember that she can wash the plate and fork by hand. She eats off of small plates and she drinks only tea but her teacup goes in the dishwasher rarely. It is brown with discoloration and stains and sticky from the sugar she ladles into her tea.

Her habit of eating off of the small plates is not new. She has been in the habit of using the salad plates for a long, long time now. It comes, I believe, from years of being monitored by my father for overeating. For as long as I can remember, my father scrutinized my mother’s eating habits. When I was a kid, a teenager, I remember going out for ice cream and my dad making my mom get a diet coke while the rest of us had ice cream cones. Divorced for 16 years, she now eats ice cream right from the container. It’s as if not using a bowl means the ice cream doesn’t count, doesn’t really mean anything, will not invite supervision or scrutiny.

My mom moved in with me in September. My brother and I had been fielding reports from her friends and neighbors for several months in which they outlined her memory declines and odd behaviors. She reported seeing Sasquatch in her back yard a year ago in March. She forgot that she had ever played Farkle, a dice game that she played regularly over the past several years with friends and family. She got lost driving and forgot why she went places, her best friend told us.

I expected she would move in with me last June, but she called and refused. She didn’t want to leave her community or her friends. She had book clubs and garden club and Friends of the Library, she said. I had time last summer, time to orient her to Bellingham, time to sign her up for services, time to drive her to appointments. But she couldn’t quite marshal her resources, became overwhelmed at the monumental task of packing up her house, of sloughing off unnecessary items, of sorting through the detritus. My brother and I showed up last Mother’s Day weekend and hauled a ton of stuff to Goodwill and the dump. We divvied up her Waterford crystal and boxed up the china to be auctioned off on Ebay. I prepared her room in my house, but she didn’t come in June. She didn’t come in July or August either. And when I asked, she told me she was too tired to pack, too overwhelmed to organize the boxes.

Her friends kept calling. She shouldn’t be driving, they said. She tells the same stories over and over, they said. As if I hadn’t noticed that. Each phone call was the same as the last. Each conversation might as well have been a recording of the previous one. She couldn’t muster the energy or wherewithal to travel. She had missed Thanksgiving and Christmas the previous years. She told her friends she hadn’t been invited. She told her children she didn’t feel like traveling. I know now that she couldn’t get organized, couldn’t leave her dog, didn’t know what to do to get ready.

My mother eats off of small plates. She only will use a small fork. Her life is getting smaller. The walls are closing in. On both of us.

Haibun
My mother has become an old woman before my eyes, aging into forgetfulness and dementia, a victim now of ancient routines. She flutters toward the light, safe and trapped simultaneously, unable to escape the confines of what little remains, the walls of her cerebrum wiped smooth, scrubbed of the dust and fluff of daily nuances, the surfaces there papered only in history, teflon to what is new. She hunkers inward, shuttering her blinds, while painting on a brave façade.

Memory’s threads fray,
Ragged edges and patchwork
The mind’s makeshift quilt

12 thoughts on “A is for Alzheimer’s

  1. Wow! This is brilliantly written. And so painful. I’m sorry for you that you have to deal with this, and glad for you that she has you. And sad that so many lives have to end this way.

  2. Jumped over from a reblog on The Militant Negro™
    ~~~~~~~~~~~~~~~~~~~~
    Heartbreakingly poignant. It is both a sadness and a comfort to have her with you while it is still possible, I imagine. My father cared for his second wife until his own health made it impossible, but I don’t believe he ever really forgave himself for not being able to care for her at home until she died as he had my mother, many years earlier and of something else entirely.

    I wish you strength, I wish you patience, and I wish you a very strong sense of humor as you step through these last days with her. So brave to share online. Thank you.
    xx,
    mgh
    (Madelyn Griffith-Haynie – ADDandSoMuchMORE dot com)
    ADD Coach Training Field founder; ADD Coaching co-founder
    “It takes a village to educate a world!”

    .

  3. Pam, your passionate and poetic writing is a continual inspiration to me. And that you can write like this while living your crazy, busy life. Thanks for sharing.

  4. Pingback: B is for Behind (Already!) or Boundaries | Pamela Helberg

  5. I just recently started blogging about my journey alongside my own mother with Alzheimer’s. I am so glad to stumble upon your blog. There is so much about your post with which I can relate. Thank you for putting words to what’s on my own heart.

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s